Our Pal Alan S

Photo of: Alan S

Easy remember link: http://www.postpals.co.uk/pals/Alan+S

Quick Link: Alan S's Story

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Born 24/09/2002
Illness Cystic fibrosis (CF)
Status Current
Home Page http://jewels1311.blogspot.com/

Address: - READ SAFETY

C/O 10 Cardon Place
Bourtreehill South
Irvine
North Ayrshire
KA11 1EU
United Kingdom

NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Email - READ SAFETY

Email Pal

Other Information

Alan S's Parents/Guardians
Julie
Alan S's Siblings
Amy 29/12/1994 loves music and playing the piano and clarinet, watching tv (especially camp rock), loves Disney (especially Tinkerbell) and all girly things like make up and the colour pink.
Alan S's Interests
Alan loves motorbikes, Glasgow Rangers, anything army related, trampolining and he also loves watching TV especially Ben 10 and Dr Who.
Alan S's Favourite Colour
Blue
Is Alan S able to read?
Yes
Is Alan S able to use hands?
Yes
Is Alan S visually/hearing impaired?
No
Does Alan S suffer from any developmental delay?
No

Alan S's Story

Story written 2008

Alan was born by C-Section and weighed in at a very healthy 9lbs 15 oz. When Alan was 18 months he was admitted to hospital with a very high temperature and sore ears. The Doctors ran some tests and we got a call two weeks later to go in and see them. We were told Alan had Cystic Fibrosis and it shook our world.

They then started him on antibiotics, vitamins and Creon for him to absorb the goodness in his food, and they taught us how to do physio to keep his lungs clear. Alan has required a few operations; he suffered twice from a rectal prolapse which required surgery. He also began to require IV antibiotics every 3 months; his veins were not good so they decided to insert a port which made things a lot easier for him. He was also started on DNAse to thin the mucus in his lungs so he is able to cough it up more easily. Alan also requires nebulised antibiotics to keep him well.

Alan requires a lot of care and has to endure a lot in his life with all the medicine and being in hospital, but he is a really upbeat little guy who tries to take things in his stride.

Update 4th July 2010

Alan has been struggling with everything this month. He has been having serious pains in his legs and feet, and having headaches too. We are still waiting to see the surgeon at the specialist hospital and every day waiting feels like a month, it is so hard waiting. He is also finding getting used to his insulin difficult - he hates it. We have tears when we have to do the injections and it is awful watching him like that. I’m so hoping he gets used to it. All post will be most welcome as he needs cheering up so much.

His dad and I went fishing for the first time and he loved it. He never caught any fish but is going to try again. We also went to Linlithgow Palace this month, there was a jousting tournament on and we all had a great time. He has also stopped for his summer holidays from school; he is pleased because his legs and feet are really sore in the morning so this gives him time to recover.

Alan got a cup and shield at prize giving at school. He won the citizenship award and his headmaster said he is an inspiration to everyone he meets. He was so pleased to win it and his dad and I were very proud. He is inspirational to us every day.

We have the Diabetic nurse and the eye clinic tomorrow so hopefully the nurse can give us some tips on how to make life a bit easier for Alan.

Thanks to everyone who has sent posty and gifts to Alan. This has been a difficult month, so a huge thank you.  

Update 5th June 2010

Firstly I would like to update you on Alan’s surgery. His operation was a success and he slowly recovered from it. Due to him being put to sleep with gas because they could not get a vein in his hand or arm, it irritated his lungs a lot and he had a awful cough. He had 2 weeks worth of IVS to try and keep any bugs at bay and he will have that every 3 months now.

They have also put him on the brown steroid inhaler as a preventer because he has been very wheezy lately.

Now when I updated last month that we were waiting on MRI results, well we got a call a few weeks ago to ask me to go up to hospital as they wanted to talk to me. They told me that they had found fluid at the back of his brain and a mass at the top of his neck that they could not see properly, so they needed to do a scan of Alan’s spine. What a two weeks it was - we had surgery one week and the scan the following, and obviously we were worried out our minds. We went for the scan but they did not say a thing, only that the results would be available in a few days. Alan was so so brave. It took 2 hours to do the scan and he had to lie very still. We waited a week and no news, so last Friday I could not take the wait anymore and I rang the hospital. Our nurse called Yorkhill and they said the results were available but the neurologist had not looked at it, so she was emailing him. Monday was the bank holiday so there was nothing, but on Tuesday the hospital rang to ask if we could go up on Friday the 3rd, so of course we agreed.

We went and the neurologist told us that Alan had a Chiari 1 malformation, with a Syrinx. This means for Alan, that the part that joins his brain and spinal column has a malformation and part of his brain is through the hole, the part that controls his movement. It is so tight that it has caused a syrinx, which is a build up of fluid on his spinal cord. They are referring him to a specialist hospital in Glasgow for him to have surgery on his brain and spinal cord. We are shocked and are very very worried. The headaches he has been having is a sign of this condition, but if they don’t do the operation it could leave Alan paralyzed and we do not want that at all. He already has more than enough to deal with and now all this.

He said to me last night he is sick of hospitals, but there is nothing I can do to stop this. Please keep him in your thoughts and he would really appreciate any cards anyone can send him. I just want to give him a boost and let him know we are all thinking of him.

A huge thank you to everyone who has sent posty to Alan this month, and for all the gifts he has received - huge thanks.  

Update 30th April 2010

Alan has been having such a hard time lately, it’s been never ending.

He went up to the specialist hospital and had a CT scan and also an MRI scan but we are still waiting on the results. They are checking his chest because its not as good as it should be, and they also think his sinuses need to be all washed out under anesthetic. They also have discovered that Alan is diabetic - not normal diabetes though - its CF related. This means he needs to have insulin and we have to check his blood sugars before and after every meal. Alan is coping quite well with it, but it’s a lot to get used to.

He is also going in for a operation on the 13th May to have his bowel repaired and I’m really hopeful it will make it easier him. He also has 2 appointments to attend at the eye clinic as he has been having bad headaches and blurry vision; they think it might be because of his blood sugars.

I would like to thank everyone who has sent emails, letters, cards and gifts to Alan this month. He has so enjoyed receiving them all, especially when he has not been so well. We have received lots of email from people from the TV show. To everyone - a HUGE thank you as it has really brightened Alan’s and our lives; there are some really kind people out there.

A huge thank you to Kim Lawerance as she has been so kind and considerate to Alan and has sent him lots of things over the month including a jigsaw in parts of the world with books to match it, so thank you very much. To Jessica, thanks for the cards, and to Valerie, Kate Dee and to Kaden. A huge thanks to Stuart for the pictures and the scarf from the Rangers final, it was so kind of you. Sorry to everyone I have not mentioned, but we really appreciate your support.

Update 21st April 2010

Alan has be diagnosed with CF related Diabetes and now requires insulin every day. He also is having surgery on his bottom on the 13th May and he is struggling a bit.

Update 10th March 2010

Sorry for the late update. Alan had the specialist yesterday from the hospital in Glasgow to review his annual review results and I have to say it came as a huge shock to me and I’m finding it very difficult to come to terms with.

As you all know, every month I’m telling you that Alan has some sort of infection and our own hospital have always thought that it is upper respitory infections and they have given him antibiotics to combat them. However, yesterday the consultant hit us with the bombshell that Alan’s lungs have significant changes since last year and I can hardly believe it. They score them out of 25 for the condition of their lungs and Alan only scored 15. He is only 7 so that is not a good score at all. I’m gutted.

They are also sending him for an mri scan to have a detailed look at his lungs and sinus system. They are putting him to sleep to deep wash all his sinuses to try to prevent infections or to wash out any bugs that are lurking.

He has also been referred to the optromitist as he has been having double vision and headaches and not seeing his work very well. He had his eyes tested and it’s not his eyes so they are investigating that.

He went to see the surgeon last week due to the fact he is having a rectal prolapse almost every time he goes to the toilet, so in the next few weeks the surgeons are going to try to repair it or if necessary remove a bit of his bowel to stop this happening. He suffered from it before and they repaired it, but until they actually have a look they won’t know.

It’s been a very stressful start to the year and I’d like to say to everyone who sends mail and smiles that I am eternally grateful. It really brings smiles to us all knowing people care and take the time to write to us.    

Update 10th February 2010

Alan got his line taken out yesterday, his 2 weeks of IV'S are finished and it has made him feel a lot better in himself. He got his results from his glucose tolerance test and his levels are a little high and they have to be monitored for a month to see what the results are. He has also been having rectal prolapses again so the doctor has referred him to the surgeon to repair it again. Last time we saw the surgeon he said that a part of his bowel would need to be taken out so we are just waiting on an appointment to come through.

It seems to be one thing after another for Alan, poor wee soul, but although looking at him I can see in his eyes he gets down, when you ask him he never ever complains. He is a little star and I am so proud of him.

He got a new Star Wars toy yesterday for being so brave - he loves Star Wars at the moment.

Update 26th January 2010

Alan has been ill and is struggling with lots of infections and he is so tired, so we are being admitted tomorrow for 2 weeks worth of IV'S. Hopefully it will make him feel better. They are also testing him for diabetes. We have so much happening and Alan is so sad and down, but Post Pals really cheer him up so thank you.

I will do a proper update soon with thank you’s for Alan’s Christmas post.

Update 3rd December 2009

Sorry for the short update this month, Alan has had a very rough month with infections that we just can’t seem to get rid of at all.

He got his swine flu jag this week too and it has knocked him for six, his arm is really sore and his neck is sore. I will update a proper update next month.

May I take this chance to thank everyone over the year who has taken the time to write to Alan, it really makes his day and it brings such joy to his life, we are blessed to have Post Pals in our lives.

Wishing everyone and their families on Post Pals a very Happy Christmas.

Update 31st October 2009

Alan has had a month of fighting an infection we just can’t seem to shift. He has a cough that would frighten you and its keeping him awake at night and making him feel tired and he has not got much energy. I’m really hoping they are going to get this under control soon as it is hard going for him when he feels this way.

He had a Halloween party yesterday and dressed up as a monkey. He had a really good time.

He is still trying really hard at school and managed to get 9 out of 10 this week for spelling. He also got a certificate for topic work and pencil and bookmark. He also passed his Level A maths and I am really proud of him doing so well and coping with feeling so horrible.

We went to the cinema this month to see Up in 3D. It was really good and I enjoyed it as much as Alan and Amy.

We wish everyone a happy Halloween and we thank Post Pals and everyone who writes to Alan and Amy. We are blessed. 

Thank you to everyone who has sent Alan post this month, we really do appreciate it. To Jessica, Helen, Kim, Maria, Sarah, Kate Dee, Sami, Valerie, Margaret from America, and Lucy by email. Thank you all. To Post Pals for the DS game and thank you and for the angels of hope.

Update 1st October 2009

Alan has had a up and down month. He had an infection at the beginning of the month and then just before his birthday he began to feel under the weather and was very sick, but he seemed to pick up. Now he is back to being ill again, he has been coping with an infection but today it has got on top of him. He was feeling a bit yucky this morning but went to his friends and his mum had to bring him home. He was the colour of a ghost, i gave him some calpol and he is tucked up in bed. I hope he will pick up soon, i will ring the hospital in the morning for the doctor to have a look at him.

He has celebrated a birthday, he was 7 and he had a fab day. He got some lovely gifts, he got a dareway which is a battery operated toy you stand on and it moves back and forward - he loves it.

We also have parents’ night tomorrow to see how he is getting on, they are doing their topic on castles and he loves every minute of it.

To everyone who sent Alan a card or a gift for his birthday, thank you all so much, we really appreciate it. To Hayley Thorn, it was so nice to hear from you, to Kate Dee, Fiona, Sami, Tracey, Charlie (if you email Alan your address he has a letter for you). Rachael and Dave (happy birthday to you Rachael), June and David Junko, Rachael, Jenny, Michael and Maria, Helen (thank you for the card and gift), Jessica for the card and gift and for all her support, to Kim Ginger (your present and card was really appreciated and your cards are so cool) and to Valerie, thank you for everything, you are so kind to all of us, to Vikki thank you for the card you sent Alan, they were really nice words.

Update 30th August 2009

Alan has had a up and down month. He has had this haemophillis bug for weeks and can’t shake it. He has had an awful cough and a runny nose for weeks and we are waiting until Monday for a swab to come back. The last one we handed in got lost somewhere so it has been a waiting game for the last 2 weeks.

He also went back to school on the 17th and he has settled in not too badly, just the tablet taking incident, and when he is at school he has real issues with going to the toilet so with the schools help we are working through that. He also has been happy to be back at school with his friends and he really likes his teacher so that is a real bonus.

He is looking forward to his birthday in September; i can hardly believe he is going to be 7. We have the hospital on the15th for a port flush and a check up so hopefully it will go well and i will update next month.

A massive thankyou to everyone who sent Alan posty this month, they really have been a god-send. He has had cards from America and Cuba. To Natalie, Kara and Osmany from Cuba, to the crafty place challenge ladies thank you so much the cards are beautiful, to Kim Ginger, Sarah, Hayley, Kate Dee, Sami, Jessica for her regular post (and love and support - we missed you when you were on holiday), and to Valerie thank you so much for all your mail and gifts you send to the kids and to me, you are a wonderful person and we also missed you very much when you were on holiday.

Update 3rd August 2009

Alan has had a difficult month; he has been fighting a infection that he can’t seem to shift. We are waiting on results from the lab to see what treatment they will do now, as 2 weeks of antibiotics hasn’t seemed to move it.

He has also has been struggling with CF, he has been very tearful and gets really upset saying he wants to be a normal boy and that he doesn’t want to take tablets anymore. This has been heartbreaking and hard to deal with for all of us. The psychologist came out on Tuesday and had a chat with him, explaining why he needs to take tablets and showed him what they do in his tummy. She was brilliant with him. She is taking it slowly so we are seeing her again. He just keeps saying he wants to be normal and that he is not happy having CF. Heartbreaking.

He goes back to school in 2 weeks. We broke up much earlier than the schools down south, so hopefully when he goes back he will get back into the routine of school and the upset will pass. I think some of the children have been asking him about why he needs to take tablets and this is making him feel uncomfortable, so fingers crossed this will not get worse.

Post Pals have been a godsend. I can’t tell you how happy Alan is when he gets cards and this makes him feel special and loved, so to everyone who has taken the time since Alan has been on Post Pals - a huge THANKYOU.

Thanks to everyone who has sent Alan and Amy posty this month. To Valerie for all her love and support, to Jessica for all her cards, to Kim Ginger for her cards, dinosaur book and spy kit and the gift for Amy, to Jackie, and Jenny Clift too. Thank you all ever so much.

Update 30th June 2009

I really did speak too soon last month when I said Alan had a good month! He developed a terrible cough and could not even lift his head off his pillow; it really hit him for six. I rang the hospital and they saw him straight away. After an examination and a throat swab, they thought he had an infection and they would give him a covering antibiotic until his swab came back. It seemed to pick him up and the nurse rang to say he had an infection and not one of the bad bugs, thank goodness. He was to take the antibiotic for 2 weeks and be re swabbed. He is still coughing and is quite breathless at times, although when it’s really warm and humid he gets like that anyway. He seems to be a lot better, although the swab is not clear yet and we are persevering with another 2 weeks of meds.

I am hopeful he will stay the way he is, because on 1st July we are going to Disneyland Paris for a week. We are all so excited and looking forward to it. Alan is very excited about meeting Mickey Mouse! He also stops for his school holidays on Tuesday for 6 weeks and then will go into primary 3. He is looking forward to the summer holidays. We joined Historic Scotland and are visiting castles. We went to Edinburgh castle and had lots of fun and we are hoping to do lots more in the summer holidays.

Every month I am astounded by people’s kindness and love that they send. To Jessica - a huge thank you for all the cards and the keyring you sent Alan, we really appreciate it. To Valerie - thank you for all the cards you send the children, it really brightens their day receiving them. Thank you for the books and pencils and the sweet, they will be well used. The kids look forward to receiving your cards and I would also like to thank you for the beautiful card you sent me too. I really appreciated it and it made me feel special. To Sarah for her cards and to Kim for her cards, they are out of this world, especially the dinosaur one. Thanks to Michael and Maria, to Sami for the card and motorbike, and to Dispina for the card and postcard. Thank you all so much, our days are brightened by you all and i really thank you.

Update 31st May 2009

Alan has had a really good month health wise with no problems for the first time in years - i hope im not tempting fate saying this. He has had a busy month with staying at his aunts for the first time and he really enjoyed it. He was also away on a school trip to the lifeboats and had a great day as they got on the boats and he got to sit in the drivers seat. He also got his report card on Friday and it made my heart burst as he’s doing really well and trying his best and that is all we can ask of him. He is looking forward to his holiday in July and is busy saving his pennies, looking for jobs to do that end up costing me a fortune!

A huge thanks to Jessica for the brilliant balloon she sent Alan. He absolutely loves it and it really made his day receiving it. Thanks also for all her cards and love and support. To Sarah, thanks so much for sending Amy and Alan a gift. To Valerie, thanks for your cards and support. Thank you to Kim Ginger. To the Fullman family, thank you for sending Alan a Doctor Who torch - he takes it to bed with him.

Update 30th April 2009

Alan has had a reasonable month this month. He has been able to go out to play at school since the weather is a bit better. We had parents’ night and Alan got a fantastic report, he has come on so well this year at school and copes remarkably well. Kim sent him a beautiful 3D card for doing so well and he adores it as it’s a 3D dinosaur. We took him to the museum where he saw a dinosaur exhibition and he loved it. We also went to the cinema to see Monsters v Aliens in 3D and it was amazing to watch.

This month i also let Alan stay at his aunts for the first time. Due to his meds i never let anyone else do it, but he was keen to go and had a great time and it meant Alan and i had a bit of time to ourselves. He is staying again next weekend and Alan and i are going away for the weekend because Amy is in London with school.

Alan has hospital in 2 weeks for check up and i will update next month or on my blog.

A huge thanks to everyone who sent Alan and Amy mail this month. To James, Kim, Helen, Maria and Michael, Sami and Aisha for their cards. To Valerie for the Army hat, stickers and cards to both Amy and Alan, to Ria for her letter and picture, to Alaison for her postcard from New Zealand, to Shirley for her cards, and a heartfelt thanks to Jessica for all her letters. To everyone who has taken the time and thought to sent a card or gift, they mean so much to them and they really enjoy receiving them. Amy sends cards to other pals regularly and Alan replies to every letter he receives. Thanks to Post Pals for sending the bear as Alan loves it and sleeps with it every night. Also for the egg - we are busy growing it and although there is nothing to see yet, we are waiting and hoping.

Update 1st April 2009

Alan has had a busy month. Some of his results from his annual review are back so they have adjusted his meds a little - some of his vitamin levels were a bit low so they have upped them a little. He saw the ENT too as his ears are really sore all the time and they are over sensitive. They hope he will grow out of it and I hope so too because the things we take for granted really hurt him and the bell at school leaves him in agony.

He has been really trying at school to get 10 out of 10 in his spelling test and finally he made it. He was so chuffed and we were proud of him (he got his well earned playstation game). Jessica sent him a certificate and he has it on his wall with pride. 

Alan and Amy made me breakfast in bed on Mother’s Day and it was lovely. They got me cards, a teddy and chocolates. It was a lovely treat.

We also had sad news as one of our friends died. We all took it hard and Alan finds it difficult to deal with. Although he is only 6, he has lost his papa, gran, and now our friend, in 2 years and words are hard to find to explain this, but we just try our best.

Health wise, Alan is struggling with a bug in his throat but managing as best he can. CF gets me down sometimes.

On a happier note, we are booked to go to Disneyland Paris in July for a week. Alan is so excited and so am I! He has wished for this for so long and now it is happening.

A huge thank you to everyone who wrote to Alan and Amy this month, they really love receiving post. A big thanks to Sarah who sent me a card this month as it really touched me. To Jessica for all her letters and gifts. To Helen for the card and the tapes she sent Alan. To the person who sent the scarves, and to everyone else who wrote letters and cards. Thanks Post Pals for cuddles the bear - Alan has slept with it every night since he got it. To Val for the posters and to Kim for the bunny making kit. A big thank you, it is really appreciated.

Update 1st March 2009

Alan had a bug at the start of February which really made him feel ill but as normal he bounced back and didn’t need to miss too much school as it was half term. I thought i had taken his bug as i felt terrible but it turned out to be shingles which was really nasty and i looked and felt awful. Alan wanted to see Bolt 3D but i wasn’t well enough to take him so his big sister came to the rescue and the two of them went to Frankie and Bennys first for dinner then to the cinema and he had a great time.

He has been at a few birthday parties this month as his cousin was 5 and had a party and his friend from school was 6 and he was at the bowling for his party. He also was out with his friend from school for his dinner and then to the soft play where he had a ball.

We have had workmen in fitting a shower rather than a bath for us to make things easier when Alan’s port is accessed. The occupational therapist helped us get it done and it has made life a bit easier. It means Alan can get a shower in the morning quickly rather than me having to put him in a bath because he sweats so badly and I’m really pleased it is done.

Alan has to go to hospital on Wednesday for his lung function test to finish off his annual review, and then hopefully we will get all the results the following week. He had his liver scan done but they don’t give us the result until they have it all done. I hope it has all gone well. We have ear, nose and throat clinic this month too as Alan’s ears are still not completely right since his operation and they want to check that again. His ears are very very sensitive and a noise we don’t think is loud is very loud to him. When it’s the school bell he stands with his fingers in his ears. We will update you next month on his results.

A huge thank you to everyone who took the time to write to Alan and Amy this month, as always he loves receiving them. A huge thank you to Jessica for all her letters, Shirley for the letter and the card making things you sent to Alan (he has done you a card and i will post it off to you), to Rachel for her card and the stickers she sent, to Kim who sent Alan a card and a bolt magazine (thank you, he loved it), Grace and Linus for the post card, Ria for the lovely letter she sent us, Valerie for the postcard, Kate Dee for the card and to Lu, June and David Junko, Maria and Michael and to everyone else who sent Alan a valentine card, a huge thank you as it made him feel extra loved. He also received a postcard from Samuel in Finland and would like to reply to him as he was so happy receive it, but it had no reply address.

Update 2nd February 2009

Alan has had a up and down month. He had his annual review in January but it’s a bit early to get the results yet. He has had terrible nose bleeds this month which was very scary for both of us as it happened in the morning when he woke up and scared us dreadfully but we coped. Alan is also suffering from a terribly sore throat and a dreadful cough at present and is a bit down in the dumps with it.

Alan had a birthday party this month - he went ice skating for the first time and he really did enjoy it. He’s also working hard at school and on a Friday they are now getting spelling tests. At first he was getting 4 out of 10 but last week he got 8 and he was so pleased with himself that we bought him a toy as a treat for doing so well. He is working towards getting 10 out of 10 and when he does his special treat is a new playstation game - he really wants transformers.

A huge thanks to everyone who sent Alan a card or gift this month. He enjoys receiving them very much. Thanks to Hayley for the pencil case and snow globe from London, he loves it. To Helen for the gifts for Alan and Amy, to Post Pals for the gifts not only for Alan but the yummy chocolates for me too - I really did enjoy them although I shared them so I didn’t feel guilty eating them with all the healthy eating at this time of year. To Jessica for the cards you send every week and the great pictures of London zoo and the postcards. To Shirl, Alan loves your cards and he would like to send you one back if you wouldn’t mind putting an address in please. To Rachel, thank you so much for Alan’s bear card, he loves it. Thanks Sami for the card too. Thank you to Kim Ginger for the Chinese pack of fortune cookies, a book mark, a scroll of the year he was born under, and a pair of chopsticks. He had great fun trying to use them to eat his Chinese meal, so a big thank you for that as he really loved it.

Update 31st December 2008

Alan has had a very busy month. Health wise he is doing ok just now, though he had a port flush in the middle of December, but we don’t need to go back to hospital until 16th January.

We went to see the Wizard of Oz at the Citizens Theatre and Alan got invited to meet the cast. Before Alan was on Post Pals he won a competition in our Scottish national paper - he was awarded the award Our Little Hero and through this got invited to meet the cast. He met Dorothy and the Lion and got to wear the Tin Man’s hat. It was a really lovely afternoon.

We also went to see him in his school show - it was really good and the kids did well. Alan was a bear in the play ‘The little angel’. 

During December Alan was so excited waiting for Santa to come. He has been really aware of it all this year and enjoyed the build up to the big day. The letters and gifts from the reindeers really made him feel ever so special and he has them proudly hanging in his bedroom. He got a Rudolph nose and antlers in the Rudolph card and wears them with such pride.

He received lots of cards and gifts from people and your kindness and generosity is much appreciated. It certainly makes him and his big sister feel special. 

To Lu, thank you for sending us cards and the letters you sent are really appreciated and very special to us. To June and David Junko, Despina, Kristina, and the Homberg family - these people all sent cards from abroad, so thank you for taking the time to make Alan smile. Thank you to Sarah, Maria, Hayley, Julie, Jessica, Jenny, Helen B, Helen T, Shirley, and Kate D, thank you all for the cards. To the person who sent Alan the letter from Santa - it made his day! He had been asking me about Santa’s good list and when he got the letter he turned to me and said ‘mum i must be on the good list’. It was a very special moment. To Alan and Amy's elves, thank you very much for their gifts. To Amy's elf, Jessica, and the person who sent her 4 gifts, thank you so much, she loved everything. To Alan's elf, Mrs Whittaker, thank you ever so much, Alan loved all his gifts. Also to the person who never put a name on it, thank you. To the Post Pal team, thank you for the gifts. To Grace and Linus, thank you for the book. To Julie Barrett for sending a gift to Alan and Amy. To Jessica, your generosity is really appreciated. Alan looks forward to receiving your cards.

A huge thank you to everyone who has taken the time to send Alan anything right from the time he joined Post Pals. We really do look forward to receiving your post and Alan enjoys replying to them.

Wishing everyone a happy and healthy New Year.

Update 28th November 2008

Alan has had quite a good month and recovered really well from his surgery last month. He is back to his old self and his ears are very much improved so it was all worth it.

He came home last week from school with a certificate for "PUPIL OF THE MONTH" which he got for trying really hard in class and completing all his tasks. I can’t express how proud of him i am, he really has come out his shell since he started at his new school and it is wonderful to see his teachers getting the best out of him. 

We have just returned from the pantomime (mother goose) and we all really enjoyed it. We also have a busy weekend ahead as we have Alan’s school Christmas fare tomorrow morning, then Alan has a birthday party in the afternoon, then we are going to see the Wizard of Oz tomorrow night and we’re really looking forward to it.

Alan is having a school concert this year and is playing the middle size bear and his class are singing a song so he has been practicing it and we’re looking forward to see him performing it. 

Alan is so excited this year about Christmas and is asking me everyday when the advent calendar starts, so when Monday comes we really are on the count down. 

A big thank you to everyone who sent Alan posty this month as it really does light up his day (and ours) knowing that people out there care and think about him. A big thanks to Jessica B, Sami, Karen M, Grace and Linus, Kate Dee, and June Junko and her husband David. Thank you all, it really means a lot to us. Also Thanks to Lu who emails us every week. A big thanks to Jessica for the gift she sent Alan this month, Alan really loved it and had lots of fun building it up with his daddy.

I would like to take the opportunity to thank everyone who has written to Alan and to wish everyone a very merry Christmas. Post Pals have really enriched our lives over the short time Alan has been a pal - we have had lots of different people write to Alan and it is very heartwarming to know people our there really care.

Update 1st November 2008

Alan’s month started off with us finding out that he would require surgery on his ears. It came as a relief in one hand and in the other we were really worried because they had to put him to sleep. His operation took place on the 9th October and it all went according to plan. They removed the gromets from his ears and cleaned his ears all out and he had a week off school and has recovered well from it. While he was off school he has been making model airplanes and painting them with his dad then hanging them from his ceiling in his bedroom and he really enjoys making them. His left ear is still a bit weepy and when we had a hospital appointment on Tuesday they were telling us his left ear is in really poor condition inside and the specialist will see us to see what they can do about it. I just really hope it’s soon. Apart from his ear the hospital is pleased with him as his weight is still the same as last month although he has grown a tiny bit, his lung function this month was really good and they have given us a physio belt for Alan to wear when he is exercising and to say he hates it is a understatement!

We had parents’ night for Alan and the teachers are really delighted with the way he has settled in. His work was really good and his reading has come on since last year. They say that even though he has a lot of medicine to take at school and sometimes he cant get out to play or take gym, he never complains and is a joy to have in the class. I came out feeling really proud of him.

Alan has been really looking forward to Halloween this month and has been really excited on the build up to it. He was at a Halloween party at school and dressed up as a soldier and looked really good. He went out trick or treating with his sister and cousin and enjoyed it.    

A huge thank you to everyone who sent Alan cards and gifts this month, they really do cheer him up when he gets post. Thank you to Hayley Thorn, Helen, Julie, Karen (sami), Grace and Linus, Jessica, Maria and Michael and to Post Pals for the Halloween parcels. Alan loved receiving them all and i hope i have not missed anyone as I’m still trying to find a system to remember everyone. Thanks also to Lu who emails us every week to see how we are.

Update 1st October 2008

Alan had a hospital visit today about his ears. They were hoping they were going to clean them out, but no, Alan is going to require surgery to remove the gromits in his ears and relieve the pressure in his ears. The operation has to happen either next week or the week after, we are just waiting on the Doctor’s secretary to get back to us. We are worried but know it is needed to stop the running in his ears.

Update 28th September 2008

Alan has had quite a good month apart from his runny ear which is still causing him problems. It has been a month now and it’s still running. We have had 2 lots of antibiotics with no success, so during a hospital visit on Tuesday our consultant called E.N.T. They seam to think that he has an infection in the gromit and that it will need flushed to clear it. To do this they inject into his ear to try to wash it out and stop the running - it sounds quite painful. We have to go to have it done on Wednesday and I have to say I’m not looking forward to it!

Alan has gained 2.5kg and grown 1.5cm since our last hospital visit and they are really pleased with him.

Alan celebrated his 6th birthday on the 24th and he had a great day. He got lots of nice presents which included a remote control tank, a camcorder, army things, a projector for his room and much more. He invited 6 of his friends to the ten pin bowling then we went to wimpy for a burger and we had his cake we had a army tank cake for him he was over the moon with it.

He has settled in really well at his new school and his class had to choose a pupil council member and Alan was chosen. He was so excited when his dad and I picked him up! He has to go to the meetings and be the spokesperson for his class – I’m so proud of him. He used to be so shy but he has grown into a confident, independent wee boy.

We are looking forward to the beginning of the month when his big sister turns 18. We are going out for a family dinner.

Thank you to everyone who has sent Alan mail this month. Thank you to Hayley Thorn, Jessica, Helen, Linda B, Maria ,Jenny, Sami, Julie, St Mathews Sunday school, Maddie, Grace and Linus, Jennifer, Jade and Juno from the USA. Thanks you to everyone who sent birthday cards and gifts to him as he loves getting them, they really make his day. Also, thank you to Ms Lu who emails us every week to see how we are doing.

Update 30th August 2008

Alan has had quite a good month. He visited the safari park and saw all the animals which he really enjoyed. Alan loves visiting the cinema and we have been a few times this month. We went to see Wall-e, The Mummy, Batman and The Hulk, all of which he really enjoyed. We also had a festival where we live and we went and saw the big parade. It had horses and bands, dancers, people dressed up, and he really loved watching it. We saw a tiny little pony and that was Alan’s favourite part.

He also started a new school and has moved into primary 2. He has made lots of new friends and has settled really well. I was a bit apprehensive about him starting, teaching someone new to do his medication and worrying if they would do it correctly, but Alan’s helper has picked it up really well.

Alan has a bit of a cough and a very runny ear at the moment. The hospital has started him on antibiotics so hopefully he will start to feel better soon. We are hoping he is well for his birthday.

Thank you to everyone who sent Alan cards as he really loves receiving them. To Julie Barret, Kate Dee, Karen (Sami) for her motorbike cards, Helen for her fish card and the lovely fish you sent Alan - they are up in his room, so thank you. Maddie (Vikki’s Nan) and Karen thank you for your postcards. To Hayley Thorn - a big thank you for all the cards you sent Alan, he loved them all, especially the tiger card. Susan for the teddy bear card with the medal, Alan loved it, so thank you. Thank you to Grace for the bubbles and card you sent Alan, he really loved them and they helped with his physio too. To Jessica for Alan’s discover and dig toy - he really loved it and he spent the morning uncovering his treasure, thank you. Big thanks to everyone who emailed Alan too. Alan has been replying to the cards he has received and it’s helping his writing so it’s good when there is an address on it.

Post Pals is a wonderful organisation that has put a smile on Alan’s face when he receives post. When he is under the weather, seeing him smile means the world to us.

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