C/O 23 Newlands,
Kings Sutton,
Banbury,
Oxfordshire,
OX17 3QH
United Kingdom

NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Email Pal

Enya W's Parents/Guardians

Carina

Enya W's Siblings

Rhys 13/11/1997 computer games. Finn 25/05/2001 playing outside.

Enya W's Interests

Princesses, ballet, fairies, computer, colouring, glitter, anything girly.

Enya W's Favourite Colour

Dark pink and purple

Is Enya W able to read?

No

Is Enya W able to use hands?

Yes

Is Enya W visually/hearing impaired?

No

Does Enya W suffer from any developmental delay?

No

Story written 2010

Enya had been under the weather for a long time (getting on for over a year). Her weakness and general well-being became worse over time. We were back and forth to the hospital with our concerns but never seemed to get any answers. Eventually she ended up in hospital with pneumonia; this seemed to be where the journey took a turn. Enya was treated with antibiotics but left hospital no better. She seemed in so much pain and was unable to walk or even be touched.

One evening whilst getting Enya ready for bed we noticed a lump that had appeared out of nowhere on her sternum. That afternoon we were rushed in for an ultrasound and the next day she was at another hospital for a biopsy. It all seemed to happen so quickly. The results of the biopsy a week later revealed that she had a rare haematological condition called Langerhans Cell Histiocytisis. At last we had some answers to why she had been so unwell but still we were very unaware of what the future held for Enya.

After many scans we found that Enya had multifocal bone LCH, and had many lesions on the skull, neck and spine. Enya is now undergoing an intensive course of chemotherapy and steroid treatment to suppress the condition.

We hope in the future she will regain quality of life and be allowed to be free from disease.