Charity Number: 1137175

Connie B

Story Written 2023

We found out prenatally that Connie has an extremely rare condition that her late sister had called Mitchel Riley syndrome, at birth she also suffered a huge brain injury resulting in HIE. Connie is TPN dependent due to intestinal failure, type 1 diabetic and has liver disease. Due to the HIE Connie has quadriplegic cerebral palsy, dystonia and severe visual impairment.

Update 9th of July 2026

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