Charity Number: 1137175

Freya D

Freya D

Freya D

D.O.B: 17/05/2020

Illness: ATRT Brain Tumour (Malignant)

Status: Current

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C/O 62 Hume street, Kidderminster, DY11 6RB, United Kingdom


This is a forwarding address for the Pal, we do NOT Disclose home addresses.

Other Information

  • Parents/Guardians - Stephanie
  • Interests - Lego, Mario, Nintendo switch, Barbie’s, mermaids, unicorns, princess’ and dressing up
  • Favourite Colour - Pink
  • Able to read? - Yes
  • Able to use hands? - Yes
  • Visually/hearing impaired? - No
  • Suffers from any developmental delay? - No

Siblings - aged 3 to 16 wishing to receive post

Oscar (19/05/2013)

Interests: Football, fishing, planes, Liverpool fc.. His favourite colour is red.

About - Freya D

Story written 2026

On the 9th of September 2025 our whole world came crashing down upon us.
Following a summer of fun and 10 wonderful days in Cyprus we returned home to start a new academic year for both of our children but sadly that wasn’t the case for our beautiful 5 year old daughter Freya.
What had started as random episodes of nausea and headaches had turned into daily morning vomits, dizziness and unsteadiness.
Having visited the GP multiple times and not having been listened to, it was by chance we managed to speak with a nurse at our local hospital who arranged an emergency paediatric appointment where Freya was assessed and referred for an emergency MRI.
The images highlighted a large 3cm posterior fossa brain tumour.
We were blue lighted to Birmingham children’s hospital where she had further tests, scans and meetings with surgeons before enduring a 12 hour surgery to remove the tumour from her brain on the 12th of September 2025.
The surgery itself was difficult but because of the tumours location Freya developed posterior fossa syndrome meaning she was unable to walk, talk or swallow.
Freya has faced months of neuro rehabilitation alongside speech and language, physiotherapy and occupational therapy and we couldn’t be any prouder of the progress she has made in this time. She is now talking, walking with support and able to eat a soft diet.
The formal diagnosis of her tumour is Atypical Teratoid Rhabdoid Tumor (AT/RT) subtype TYR.
Freya is following the EURHAB protocol and has so far completed 9 rounds of chemotherapy and 30 sessions of proton beam therapy. She has a few more cycles of chemotherapy still to complete but we continue to pray for a positive outcome and clear scans.